Update 3.27.18
Today was a roller coaster of emotions. Questioning every decision I’m making, hysterical tears because I think I’m making bad ones, and joy at the simple motion of making a fist. When I visited with my hubs before surgery, I asked him if he wanted me to talk to him and to make a fist to tell me yes. He made a fist. So I cried and then talked to him about our son and the multiple doctor appts to deal with his messed up eye over the past two days (chalazion/stye – cause I needed ONE more thing on my plate). Then I flattened his hand and asked him to make a fist if he loved me. And yet again, another fist. I cried and told him that I would continue to fight for him and help him and advocate for him in the fiercest way I know. He’s doing will on the trach. It’s nice to see his face without tubes. Tomorrow starts even more adventures. We’re moving to a LTAC which is on another floor. He doesn’t need the high level of care that the ICU is anymore. Keep praying for his brain to have miraculous healing and for me to get the rest and clarity that I need heading into tomorrow. We love you all. Karen and Bob xoxo
