They just do. They are a horrible horrible thing to experience. They can be caused from a stroke or blunt force trauma or by being shaken as a baby. Or a host of other things. And you can’t see this injury. And that sucks too.
I had a great day yesterday. Long, as usual, but good overall. Mikey “helped” me at school for a couple of hours and then we went to the “big city”.
Mikey typing up my lesson plans for me. It’s gonna be a lot of “sbavahshndnxnnnnnsjnsn kammxndbanmmmmmmdnsjahsbnd” for the first week.
Daddy and Mikey at the only remaining original wall of the John Ross house (Betsy’s husband) which is where we go to see Bob’s neuropsychologist. Society Hill Dance Academy is on the first floor. The first lesson is free. I’ve been wanting to go for the past two months. Might need to pull the trigger and get my dance on while Bob’s at therapy.
I did a bang up job (where I didn’t bang anything) parallel parking. I have gotten better and better with it, but this was a one shot deal. I didn’t have to go back and forth like a K turn. I was so proud of myself. My fear of city driving has all but disappeared over the last five months too. And it’s a good thing, because we are back in Philly again today for more appointments.
We went to Jefferson this morning to see a new neurologist. And we will see Dr. Kucer and his former therapists later on today. Bob completed some cognitive testing today at Jeff. It was a test he’s taken repeatedly and he did well on it overall. Our ride in today was a rough one. He was filling out the packet of new patient information for Jefferson and was very overwhelmed very quickly. He was also very short tempered with me and let himself out somewhere along Walnut Street to walk to the hospital on his own. 🤦♀️ He got lost along the way and went into the wrong building. But eventually made it to the appointment. The plan is to cut back on a couple of meds that can also be affecting his mood and cognition.
It feels good to blog again. It helps me to unload all of the stuff rolling around in my head. And I love the supportive texts and emails after I publish a post. It helps to lift me up and I didn’t realize just how much I needed it and how much I have missed that these last two months.
Keep the prayers coming. For his brain to heal and for him to develop lasting strategies to compensate for the deficiencies. For patience on both of our parts to cope with the changes and “new normal”. For the lawyer to contact me back about appealing his disability denial. For us both to understand that we are on the same team.
Bob used to say “same team” to me anytime we got in an argument so that we would both remember that our end goals are always the same and that we would work together better. It’s something that we are starting to say more and more to each other now. You are all also on our team now (whether you like it or not). 😘
Same team.