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Brain Injury Recovery Starts Now

Shower=Wave of Joy

I got a shower tonight. In my own shower. And it was amazing. Stood in there for 45 minutes. Enjoying my shower beer. Staring at the tree and weird foil designs in there. Reminiscing about my grandmother saying she would “send me back to the Indians” if I took the fancy shower curtain off of it’s hook. Which always made me wonder “why back? Did I come from them in the first place?” This was over 35 years ago and she was born in 1921. So consider the context. She was a saint. RIP my darling Clementine…any-who…I digress.

The shower. We haven’t had but a trickle of water out of the shower head since we’ve been home in June. We’ve been showering at the office (aka our old apartment) and at anyone’s house who would let us. Like nomads. And while the hospitality has been lovely, it just sucked.

So it was amazing to have a little bit of normal in a summer that has been anything but.

Today marks ten weeks since Bob’s discharge from Magee. He was at Magee as an inpatient for 9 weeks. That period was a cake walk compared to now. Really, March 20-June 20 was so simple. I worried about Bob, but I didn’t have to care for him day in and day out. I’ve been wanting to blog and have the title be “Summertime…and the livin AIN’T easy” but I just haven’t had the strength to do it. Because I feel like anything I have to share is so incredibly negative. And I don’t want to be “Debbie Downer”.

  • Bob’s depression and his short temper are the things that stand out to me the most since we’ve been home. And his inability to follow more than one, maybe two directions at a time. The short temper is getting a little better, but the whining from our almost three year old sends him over the edge. If you package that with the tiny 7 month old foster baby crying, he has to put on noise cancelling headphones and walk out of the room or house all together. Leaving me to tend to the kids on my own.
  • We have had an OBSCENE amount of appointments, procedures, and therapies. Countless trips to Philly. We were there three times a week throughout July. Michael has had three therapies a week as well as ENT and cardiology appts for a heart murmur. He’s just fine. Tiny baby will soon have four hours of therapy a week as well as ongoing appts with pulmonary, ENT, and gastro. And his breathing has been all over the place this summer with his allergies. I’ve had a mammogram, colonoscopy and upper endoscopy, and our poor cat had mouth surgery to remove a mass (not cancerous). And both cars have been in the shop for major brake repairs and my pesky tire that gave me trouble months ago FINALLY just got totally fixed.
  • Bob has been going to OT, PT, and Speech essentially three days a week all summer. He also sees a neuropsychologist every week in Philadelphia and she’s amazing. He’s on antidepressants now which aren’t helping, so we’re still working on that. I’ve almost called 911 out if concern for his well-being on more than one occasion. When I tell him he looks good, his response is “I’d look better in a coffin.” He often tells me he feels like he’s trespassing. When I ask him to explain, he says “On earth. I should have died that day”.
  • I’m doing my best to be supportive and understanding of a brain injury that I don’t fully understand and the no one can see. And we have no answers on when he will be “better” and when we have to just accept a “new normal” because he will be as good as he will get.
  • For those readers who are friends with either of us on Facebook, you know we post next to nothing. And as of this moment, have posted nothing about the accident. But I did post about the opportunity to go to Eagles training camp with a group from Magee. My post was typical Facebook happiness. But the reality was that Bob had a massive headache from the music and noise after about 5 minutes. He felt like it should be Christmas morning and he should be jumping out of his skin excited (his words). But he wasn’t. I went to the bathroom at the conclusion of practice and left him in one spot holding all of our stuff. I told him I would be right back. When I got out, he was gone. I figured, in typical Bob fashion, that he had headed to the car without me. So I started for the car. He wasn’t there. I panicked because he didn’t have his phone and I had NO CLUE where he could be. Thank goodness our friends Keith and Ron from Magee found him and brought him to the car for me. So stressful to lose him, but a great day meeting Wentz, Foles, and Pederson among others. Once in a lifetime opportunity.
  • Please keep praying for all of us. I go back to work next week. I’m not ready. Not my room. Not plans wise. Not mentally in the right place to start. This summer was not a recharge for me. I worry about leaving him here all day on his own in his depression. He will be at Bacharach three mornings a week but it’s still a ton of time here by himself with little monitoring. He has a hard time remembering to eat or figuring out what to prepare for himself. He watches the same movies repeatedly. And tells me the same stories. Over. And. Over. And he was also recently denied his social security disability claim. ๐Ÿ™„
  • If anyone tells me one. More. Time. how I must be so excited to go back to work for the break, I will lose it. Everything here won’t go away. All of the same responsibilities will exist. I’ll just add on my duties at school. Still appts and phone calls to make. And now papers to grade and lessons to create. Along with everything else teachers do. It will be a change of scenery and maybe a distraction. But not a break. Please pray for me.

And I should have called the plumber two months ago. It wasn’t even that expensive to fix.

Green circle is my grandmom’s hook. Blue circle is my shower beer cup next to shampoo and conditioner. You can see the super cool tree. Don’t be too jealous.

Mikey helping Gaga with our yearly tomato processing.

Mikey at Mullica’s National Night Out. He wants to volunteer for Weekstown’s fire company.

Bob and I with Swoop and the Lombardi trophy at training camp.

THE TREE. Bob really thought if he went to the tree that he hit with the van and saw it that it would jog his memory. We both also thought that he would remember everything as soon as he walked in our house. Both untrue. He wasn’t sure where we kept the plates.

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Brain Injury Recovery Starts Now

Home sweet home…

Bob was discharged from being an inpatient at Magee Rehabilitation hospital yesterday. June 20 was three months to the day from his accident. We said a bunch of goodbyes, I shed a few tears, and had a handful of meetings before we departed.

Bob and his Occupational Therapist, Brian

Ranit, his physical therapist

Ashley, his speech therapist

Melissa, his nurse during the day

Buckling up to head home.

Our stop for lunch. Bob’s request

We are home and working on our “new normal”. A few friends and family members stopped by last night to visit and welcome him home. We are heading out to the supermarket now and hopefully home for a nap later this afternoon.

Thank you all for your well wishes!

Categories
Brain Injury Magee

Tie a Yellow Ribbon…

I have seen patients with big puffy yellow ribbons and didn’t realize until late last week (when Bob told me) that those mean that it is your discharge week.

Bob got his yellow ribbon today. I was so excited to see his coronation.

Bob. Not so much. He is definitely excited to come home, but not as excited about the bow as I am. See his forced smile in the third picture?

I was a bit teary today as I helped him hand out his thank you cards and waited for the Edible Arrangements to arrive for the nurses station and therapy room as a sign of our gratitude for his care.

Come on. I cried as Jeremiah gave me my visitor tag this morning. This has been my life for two months. It’s gonna be a big change and a big adjustment.

And Ken (the chef in the cafeteria) made sure Bob had pulled pork for lunch (and again for dinner). Ken also said he could make it again when we come here for our one month follow up. It was the first thing Bob asked for when he woke up on April 8.

Bob thanks me all the time for not leaving him during this time. What kind of human would I be if that’s what I did?!? I adore him, even though when counting PT exercises today on his fingers, he counted at me with a special finger because I was harassing him about his count. ๐Ÿ™„โœ‹ Pick one.

On his death bed, Steve Jobs said, “The One who loves you will never leave you for another because even if there are 100 reasons to give up he or she will find one reason to hold on.”

I have a mess of reasons to hang on. He drives me crazy. And I love our crazy. Get ready for Bob 2.0.

Pray for us all tomorrow. We have three meetings before discharge and a boat load of goodbyes. Sniff.

BTW. Boy job alert. I fixed the toilet in my hotel room when the plunger chain thinger came off the stopper thinger. I wasn’t waiting for maintenance. And I’m sure those thingers have names.

I’m proud of me. I can do this. We can do this. Thank you to all of our cheerleaders and prayer warriors. Xoxo

Categories
Brain Injury Magee

Summer Fun and Fatherโ€™s Day…

It’s been a rough few days in our camp. Emotions are running high and tempers are short. All on my end of course. ๐Ÿ˜”

Friday was my last day of school for this year. My kids finish this Thursday the 21, but I have to take the last days off to finish my training, prep the house, and supervise Bob. He will need 24/7 supervision for a period of time after his discharge. I was a bit emotional as I left the building on Friday. I’ve never left before the last day and it hit me kinda hard. Some people have said, “Aren’t you excited to get your summer started before everyone else here?” And my response is, “You DO know why I’m leaving four days early, right? I’ll trade you.”

Mikey, Tiny baby, and I spent some time Friday evening with Lisa and crammed a ton of summer fun in a few short hours.

Miss Lisa treated Mikey to ice cream from the truck. We don’t ever hear that music where we live.

Spider-Man ice cream (which was more like sherbert, so I shared). It was hot and melting quickly and he didn’t complain at the big bites I took from it.

He was a sticky red mess and loved every minute of it. We learned how to play freeze dance. And ate goldfish. And played on the swing set. And did cartwheels in the grass. And blew bubbles. It was a great night to play outside. And he needed that normal kid fun. And so did I. And just so you don’t think he is this perfect little angel, he completely melted down when it was time to go and made a wealth of bad choices. I wouldn’t have wanted to leave Miss Lisa’s either.

On Saturday, Rebecca took Michael to the beach with her so Tiny baby and I could work on packing up the house to move back home and run a few errands. I filled my entire car and STILL have more. I had to borrow three of Joey and Brittany’s suitcases on top of my two and our clothes are not all out of the house.

He had a blast by the way. I don’t even think he ate that much sand.

And he was exhausted.

And then arrested for having an open container. Just kidding…

And this morning, I took the boys to Magee to see Bob for Father’s Day. Father’s Day is really tough for Bob this year because he doesn’t feel like much of a dad right now because he isn’t home. He desperately wanted to be home by Father’s Day and we told him discharge would be around this date. It’s also always hard because Bob’s father passed away when he was a teenager.

We brought him presents (he was emotional opening them) and went to recreation therapy with him. It was rough because the boys really couldn’t participate with him in this therapy because he was doing computer tasks so it really felt like we were home living our lives before the accident. Bob on the computer working and the kids and I just living around him sometimes feeling like we are in the way and a distraction.

Don’t get me wrong, Bob is an excellent dad and an amazing provider, but he can get hyper focused on a task and helping clients out of an urgent jam is one of those things. Imagine you are running a school or business and your internet goes down, or you can’t log on to an important system, or a server that has your most critical files isn’t responding. You would want your IT department on that IMMEDIATELY. And Bob is that guy to a host of clients. So today was rough. I don’t think I realized that it felt like home until I am typing this now.

I’m just tired. And anxious. And overworked. And overwhelmed. While Bob is excited to move home and we are too, it’s also sad for me. Surf Road has been home to us for three months. I’m truly going to miss it. Anything you need is LITERALLY six minutes away. Restaurants deliver food here. I text Brittany, “We’ll be home in 15 minutes”. She asks me often, “Will you be home tonight for dinner?” I know where things are. We have a well choreographed dance in the morning when all five of us are getting ready to leave the house. Tomorrow morning is the last one of those. Tonight is my last “sleep” here.

I will miss this “home”. Brittany and Joey’s home. Our home. They have helped me so much and helped to raise my kiddos over the last three months. Brittany’s fancy hobby lobby chalk board calendar still has all the March dates on it. I feel as if everything in all of our lives stopped three months ago. It’s all going to start up again soon.

And yes, I have spent a great deal of writing this post bawling my eyes out.

Categories
Brain Injury Magee

Weeksโ€™ and Wawa…

On Tuesday night, my Aunt Kaysi and Uncle Wayne came to visit Bob and I at Magee. They brought cheesesteaks from Jim’s Steaks and spent some time with us on the sixth floor and touring the building. It was a great visit where Bob was chatty and engaging.

He also interrupted with any random thought that popped into his head, but that’s the brain injury.

He has a hard time dividing his attention between listening and talking, so he has difficulty waiting for his “turn” to speak and holding his thought in while listening to others. I need to be a little more understanding of this, but instead, I just get aggravated and shut down. I can only take being interrupted so many times. It’s worse than being in a seventh grade classroom. I am really thinking of one particular student who liked to interject any chance that he got this year. ๐Ÿ™„

On Wednesday, Bob went on his community outing. His PT, Ranit, and recreation therapist, Tracy, went with us.

Bob was able to pick anywhere (within reason) that he wanted to go. He picked Wawa. Dunkin’ Donuts and Starbucks were also within walking distance. I could have gone for an iced tea. Maybe even a nice jewelry store to pick me out something shiny for all my hard work over the last three months.

Nope. Wawa. A place I can drive to anytime I want. He used his walker the whole way and we didn’t bring the wheelchair as a “just in case”. He didn’t even stop to rest along the way. Bob even requested to walk through a park because he wanted to see how he would do on grass. We have more of that at home than concrete. It was three blocks there and three blocks back. About 0.6 mile round trip. He was standing for about an hour. It was a huge accomplishment.

And we grabbed a bunch of different “healthier” options to try for lunch. All pretty tasty.

He’s getting there…one walking trip at a time.