Update 4.6.18
Bob is making progress on the vent. He is actually doing all of his own breathing during the day and will start to breathe on his own overnight beginning this evening. It’s called “trach collar” and it’s like having oxygen in your nose but instead it’s in his trach. He has been moving more and more since Tuesday night. He started pulling on the trach, pulling at his peg, his monitors and catheter. The staff put a mitt on him but this crafty fellow found a way to spin the mitt around so he could still pull at all of his connections. So now his right hand has a sock, then a mitt and then he is restrained. Bob hasn’t yet figured out how to do all of these same things with his left hand. He has currently worked the restraint and mitt to his mouth so he’s trying to chew himself free. He opens his eyes from time to time, but not in recognition. It’s more of a blank stare. He is starting to follow more commands but nothing consistent. If you visit him, ask him to give you a thumbs up, show you two fingers, open his eyes, or stick out his tongue. Those are currently his best tricks. His nurse, Kristal, says him doing these small tasks is equivalent to us completing a triathlon. We need to have patience. I need to have patience. He’s better today than he was yesterday and even better than last week. Please keep praying. Bob, the boys and I need your prayers of strength and healing. Thank you all. Love, Karen and Bob xo
Visiting Dada